@giorgialupi this is amazing. I'd love to hear more about the meditative aspect of data collection and the collaboration process of making it visual. Data collection can be daunting/boring and even scary when it's medical. here it was healing. did you guide her on collecting the data? did she share early samples for you to think about/experiment with? I loved seeing what you came up with but I imagine the "how" has a lot to do with the trust between the two of you?
@enjalot thank you for your thoughtful comments, very appreciated! I started to help Kaki collecting these data (figuring out together what would be the best type of info to observe / categories etc) to find a way to be in control - for what possible. During the process, the daily observations (as she told me) made her feel she was in charge in a way, and became a powerful tool to use with different doctors. She is not in this vis channel but you can reach out to her on twitter an ask directly!
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