Hi vis! I am sharing a personal project I’ve worked on that was really heartfelt:
I called it The Data We Don’t See. You can read all about it at the link. I am not sharing it for publicity, I am really interested in what you guys think about experimentations like this, be candid. :)

@giorgialupi Hello Giorgia - nice to see you here! Thank you for sharing. I find your output amazing, but I'm even more fascinated by your process, how you carve a path in this field with your pen, imagination, empathy and will.

This work reminded me of Neil Halloran's efforts to connect emotion to data, but on a large scale. I hope he saw it.

I was drawn to your concept because I also wonder how we can feel and communicate real empathy. It's only once I experienced a specific hardship that I understood what some people around me went through. Why did it take this? If I'm honest, even if I have kids, I know I couldn't really feel Kaki's emotions because they've never been this sick. Yet, it's worth trying new ways because empathy is so important (and in short supply sometimes).

@giorgialupi The grouping of days by blood test is a typical Giorgia insight. Well done. It would never have occurred to me. The whole design is very you, whimsical yet disciplined, with a beautiful final result. The representation of the palette count seems counter-intuitive: they look like an illness but we want more of it. Is that on purpose? Maybe yes, because it's about blood. I really like the notes from Kaki, like thoughts in a storm.

@giorgialupi It's nice how the data collection was soothing to Kaki. It's enough to make it worth it. I wonder how the piece will live in time - it's not easy to relive such memories.

Again, thanks for sharing and for being such an inspiration for our field.

@giorgialupi You really go beyond... It's intense. The styling is touching (so sensitive), really fitting the subject.
I can see how something like this can make you get a grip on a situation that is a logistic as well an emotional roller-coaster.
As you might already know I'm all in for these kinds of experiment! (that was me clapping :-))

@giorgialupi I think it's a beautiful way to present a difficult time, especially with the mixing of hard data points with softer personal valuations of days and periods.
But at the same time I'm a tiny bit "appalled"(?) at this painted but raw look into someone else's personal life. I applaud that you do it, but at the same time find it "too much" - likely because I'm a much more private person than this, and I fear exposing my bad days and trouble to the internet.

@giorgialupi - oh this is beautiful! What a wonderful way to visualize what was such a difficult time. I am certain that this provided some structure and thereby comfort to Kaki in very unsettling times. The result is a great example of data humanism; a delicate visual that adds a light touch to difficult data, engaging, and a most beautiful way to reflect on this experience for Kaki and Cooper.

@giorgialupi this is amazing. I'd love to hear more about the meditative aspect of data collection and the collaboration process of making it visual. Data collection can be daunting/boring and even scary when it's medical. here it was healing. did you guide her on collecting the data? did she share early samples for you to think about/experiment with? I loved seeing what you came up with but I imagine the "how" has a lot to do with the trust between the two of you?

@enjalot thank you for your thoughtful comments, very appreciated! I started to help Kaki collecting these data (figuring out together what would be the best type of info to observe / categories etc) to find a way to be in control - for what possible. During the process, the daily observations (as she told me) made her feel she was in charge in a way, and became a powerful tool to use with different doctors. She is not in this vis channel but you can reach out to her on twitter an ask directly!

@giorgialupi .. that (and the TED talk) was inspirational to the point of tears (though I'm a new parent so naturally ridden with volatility). I wish I could do what you do. Just ordered your book and I'm hoping it will expand the way I think about my own work.

For I'm trying to read Kaki's thoughts but it's hard with only a lowres img. Aesthetically its very appealing, but the low contrast makes it hard to discern. Here's my version (probably not an improvement)

@RFon thank you SO much for taking the time to read and for your moving thoughtsz here is the high resolution artwork

@giorgialupi Oh dear. Being able to read the notes does not help with the tears.

Heartfelt thanks.

@giorgialupi i just spent time with this. so moving, i'm in awe. and so glad that cooper is going to get better.

@sarahslo thank you Sarah! Yes little Coop is doing better!!

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